Skip to main content

It's Baaackk

I took a really important step today and scheduled an appointment for myself with a new therapist. One of the joys of moving is assembling your people-dry cleaners, pizza place, doctors, so that they are close to you. My hair stylist is actually already close as I've been going to her for 16 years and I've traveled to see her. So I'm set there. My therapist is over 45 minutes away and I need one that's closer.
I woke up today feeling like the left side of my face was on fire. And I knew deep down, that I will no longer be able to pretend I don't have a chronic illness. One sided face pain is generally a bad sign. So I called the neurologist and got orders for a dreaded MRI. And after 4 phone calls I finally got that scheduled. Within a minute of getting on the horn I was reminded of all the stress and frustration that comes with being sick.  The new rule is you can't schedule the appointment without the precertification number. That requires a facility. How can I pick a facility if I don't know what their availability is because they can't look at the schedule without a pre-cert? Maddening. And I have insurance. It's not the Medical Card I'm trying to use. (And all the foster parents nod their heads in understanding.)

The thing is, I know what's in store and it's no fun. Appointments, tests, medications with yucky side effects. Having to explain over an over that my condition is rare. As in, the nurse I spoke to today at my doctor's office had never heard of it. I don't have time to be sick. I have too much to get done and that probably the cause of the "flare up". 

And because I know that the meds are likely to cause depression I needed to get out in front of that piece. I was headed there anyway to deal with my weepines over my kids lack of permanency. And to add insult to injury the first person that I called told me she had no room for me.

It might all be interrelated. I just know my face feels like it's being stabbed by hot pokers and it's making me increasingly crabby.
 I'm long over due for a flare up. In that regard I've been lucky. And where my disease presents itself could be worse- I could be paralyzed or blind. It just really burst my bubble today. 

I'll be fine. This go-round we know what it is (last time I was in pain 18 months before anyone figured it out). Hopefully I will respond quickly to the treatment and move on. I'm over my pity party and just ready to move forward.


Post a Comment

Popular posts from this blog

She Never Cried

Sheila called to wish Sarah Happy Birthday and she shared a story with her that as a baby she never cried. Not when she was hungry, not when she was tired, never. She never cried.
A little later Sarah said to me:
"Mom, my Mom said I never cried. I don't really believe that. That can't be true can it? Don't all babies cry sometimes?"
Oh my sweet girl. The red flag went up for her too. As I listened to Sheila share this story fondly, I felt sad. That was a sign of her RAD. That was because she couldn't count on adults. That was because she cried and no one came so she learned not to cry.
"It doesn't sound right to you, does it?"
"I know your Mom shared that story because she thinks it's cute you never cried. It made me sad. You are right babies cry so adults take care of them. You know how you had a lot of different adults that were supposed to take care of you as a baby?"
"Yeah, like 10 foster parents."
"Well …

Minimum Parenting Standards - Monday's Post

I can't figure out Blogger's time zone and I may not have time to write Monday evening so here is Monday's post.

This week we are having another "team" meeting. This time to discuss the "minimum parenting standards" that the kid's Mom has to meet in order to be "good enough" to parent them.

Now I have all kids of issues with this entire exercise. The first being that these kids deserve better than the minimum. The second, that good enough isn't going to cut it with their issues. The hardest part though is being asked to write down a guide to being their parent FOR their parent. Putting my commitment to first reunify a family to the test. It is one thing to suggest ways in which she can be a better parent and to support the goal by not bad mouthing her and encouraging the kids to share their true feelings. It is an entirely different thing to sit down and write a guide for a woman who has yet to grasp the basics after two years.

It wa…

Reader Question: Did You change their names?

Yes we did. We actually started using their new names shortly after their good bye visit with Sheila last August. So the only name that really changed this week was their last name (kind of, one of them actually had our last name). We had started using them so we wouldn't have to try to do a name change mid-school year. Plus the kids had only been in the school the last 1/2 of the year so they didn't know everyone yet. The school was great about going with the new first names.
At some point Simon spontaneously asked his teacher if he could change his name tag on his desk to our last name. He was tired of waiting on the legal stuff. He started to write Simon Almost Last Name on his papers. So we asked all the kids and they asked for the same update. Their report cards and benchmarks still had their legal names. 
The name change was a bit cumbersome at first. We sounded like owls because someone would ask for a person by their birth name and we would all answer "Who?". W…


I had some questions asked of me recently that I thought I would answer here:

1) How do you keep doing this after so much crap?
I actually had two different foster moms ask me this. One dealing with a false allegation and one in a kinship case with a pregnant, unstable bio mom.

I'm not sure I have an eloquent answer to this question. I think I've reached a point where I see the bigger picture - the kids.  That's not to say this stuff doesn't drive me nuts or make me emotional. I would be spitting fire if we had to deal with a false allegation. I'm really upset about the potential of having to make a decision about another baby. But if not me, who? We are good at this. There are kids that need me. And I probably need them. I am a caretaker by nature.  What would I be doing with myself if I didn't have 15 different obligations all at once? I have no idea because I've always been this way. And right now all of the current drama is related to my children. I s…

It is a process

It's a physical ache. A pain in the middle of my chest.  And it causes hot tears, the kind that sting my eyes.  It settled over me today and I couldn't shake it.

It started with news that more people in our lives are expecting and today, I just couldn't muster the happiness.  I heard complaints of not feeling well and my ability to plaster the smile on my face just vanished from my body. I left the house to "run an errand" but really I just needed an escape.

All week I've been able to communicate and tell people about Solana leaving without any trouble.  I probably sounded like a PSA for "How to be the role model foster parent".

People were asking:

So will you get to adopt the little one? Is she staying?

Well no, actually.  She is going home in a few weeks. That's the goal of foster care. We are really happy for her dad. He really gets it. We've built a relationship. I'm so glad she doesn't have to go through the pain of adoption or …